International Prolonged Grief Questionnaire (IPGDS)
Record 14 past-week grief responses and review the 13-item severity sum, impairment, and cultural context without applying a diagnostic cutoff.{{ summaryTitle }}
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Grief has no single timetable or outward form. Longing, preoccupation, sorrow, anger, guilt, numbness, and difficulty returning to ordinary routines can vary across people and cultures. A questionnaire can record how often these experiences were present, but it cannot decide by itself when grief has become a disorder.
The International Prolonged Grief Disorder Scale (IPGDS) standard form asks adults who have experienced the death of a loved or close person to answer for the past week. Two items cover core experiences of longing and preoccupation. Ten items cover forms of emotional pain, while the final two questions address interference with daily functioning and whether the grief feels more severe or prolonged than expected in the respondent's community or culture.
- Frequency is not duration. A past-week response describes recent experience; it does not establish how long the pattern has continued since the death.
- Cultural context is not a universal cutoff. Mourning practices, expectations, language, family roles, and access to support can change how grief is expressed and understood.
- Impairment adds important context. Difficulty with work, social contact, or everyday activity may be a reason to seek support even without a diagnostic label.
The published 14-item form is a measure under development. Its Items 1–13 severity sum is useful for response review or research, but the official clinical threshold remains under investigation. This version also omits the separate time-since-loss question listed in the scoring instructions, so it cannot evaluate the duration requirement or produce diagnostic caseness.
Answering is voluntary. Stop when the questions feel too difficult, and use support from trusted people or a qualified professional when grief is persistent, intense, or disrupting daily life. The result is informational and must not be used for diagnosis, emergency triage, treatment selection, employment, insurance, eligibility, or safety clearance.
How to Use This Tool:
Keep one deceased loved or close person in mind and answer each statement for how you felt during the past week.
- Select Start assessment only when you are comfortable proceeding, then answer all 14 statements from Not at all to Always using the same past-week frame. Pause or stop if the process becomes overwhelming.
- Read the Grief severity total together with the core-symptom, emotional-pain, functional-impairment, and cultural-context results. Do not compare the total with an invented cutoff.
- Review individual answers when deciding what to discuss with a professional. The score cannot supply the missing time-since-loss information or culturally informed clinical context.
Interpreting Results:
The grief severity total ranges from 13 to 65 and rises as Items 1–13 are endorsed more often. It is a dimensional description, not a threshold result. No value on this form confirms or excludes prolonged grief disorder.
Core symptoms and emotional pain summarize different item groups. The functional-impairment and cultural-context responses remain single 1-to-5 items and should be read directly rather than treated as validated subscales. A lower total does not cancel a marked difficulty with daily functioning, and a higher total does not establish the required duration or a diagnosis.
Use the response pattern to identify experiences that deserve conversation or support. Qualified assessment should consider time since the death, cultural and community expectations, functioning, other health conditions, current safety, and the person's own needs.
Technical Details:
All fourteen items use the same forward-keyed response codes: Not at all = 1, Rarely = 2, Sometimes = 3, Often = 4, and Always = 5. Higher values indicate more frequent or severe grief-related experience for the named item.
Formula Core:
The published severity score is the direct sum of Items 1–13. Item 14 is excluded from that total and retained as the cultural-context response.
Here, G is the grief severity total, C is the two-item core-symptom sum, E is the ten-item emotional-pain sum, and each x is a literal 1-to-5 response.
| Result | Construction | Range |
|---|---|---|
| Grief severity total | Sum of Items 1–13 | 13 to 65 |
| Core symptom response sum | Items 1–2 | 2 to 10 |
| Emotional-pain response sum | Items 3–12 | 10 to 50 |
| Functional-impairment response | Item 13 | 1 to 5 |
| Cultural-context response | Item 14 | 1 to 5 |
Scoring requires all 14 answers and applies no reverse scoring, weighting, imputation, normalization, rounding, bands, or diagnostic threshold. A Rule Core is deliberately absent because the source does not provide a settled diagnostic rule for this 14-item result.
Care, Limitations, and Privacy:
This form does not assess immediate danger or include a direct self-harm or emergency question. If there is an immediate risk of harm, contact local emergency services or an appropriate crisis service rather than relying on the questionnaire. When prolonged grief is suspected, seek qualified assessment and culturally appropriate support.
Responses remain in browser memory during the session. A copied result link contains all 14 grief, impairment, and cultural-context responses in an encoded URL fragment. That fragment is not encrypted or access-controlled, so it should be shared only with someone trusted.
Starting over clears the in-memory responses and removes the result fragment. Any copied link or downloaded record remains sensitive even after the browser session is cleared.
References:
- International Prolonged Grief Questionnaire, International Trauma Consortium.
- International Prolonged Grief Disorder Scale, English standard scale, University of Zurich, 2019.
- International Prolonged Grief Disorder Scale instructions, University of Zurich, 2019.
- mhGAP Intervention Guide, version 2.0, World Health Organization, 2016.